Health and Wellbeing in Developmental Disabilities

Day 1: Wednesday

Day 1
Wednesday February 7, 2024

All time Eastern (EST)

11:00am-11:15am Welcome
Emcee: Tiana Kirkegaard; Young Leader, Leading Change, L’Arche Canada; Advocate, Actor, Improviser, Dancer
Conference Director: Megan Primeau; Continuing Professional Development, Temerty Faculty of Medicine, University of Toronto
11:15am-12:30pm Keynote A
How We are Making a Difference
Presenters:
Chantel Meister; Self-Advocate; Member, My Home My Rights Project; Accessibility Representative, Mount Saint Vincent University
Kara Anderson; Self-Advocate; Member, Self Advocate Leadership Network Society; Member, Self Advocates of Nanaimo
Yvonne Spicer; Self-Advocate; Member, New Vision Advocates
Moderated by: Megan Primeau; Continuing Professional Development, Temerty Faculty of Medicine, University of Toronto
12:30pm-12:45pm Posters, Supporters, and Networking Break
12:45pm-1:45pm

Breakout Workshops A

  1. Lived Experiences of Parents with Intellectual and Developmental Disabilities: Stories and Promising Practices
    Presented by: Michelle Goos (Strategic Initiatives Advisor, Community Living BC); Lizzy Walsh (Graduate Student, UBC Okanagan)
    Understanding Lived Experience
  2. “They Should Respect Us”: Supporting Successful Transitions from Hospital to Home for Alternate Level of Care (ALC) Patients with a Dual Diagnosis
    Presented by: Avra Selick (Project Scientist, CAMH); Sandy Stemp (Chief Operating Officer (COO), Reena); Melonie Hopkins (Transition Manager, CAMH); Judith Wiener (Family Member and Professor Emerita, University of Toronto); Sue Gosselin (Family Caregiver)
    Supporting Transitions
  3. Changing Behaviours around Periodic Health Checks: Is it time to Reinvent the Wheel?
    Presented by: Karen McNeil (Family Physician, Dalhousie Faculty of Medicine); Kate Awen (Disability Support Worker, Visual Communication)
    Preventative Care
  4. Mindfulness for People with Developmental Disabilities
    Presented by: Kirsten Smith (Post-Doctoral Fellow, Azrieli Adult Neurodevelopmental Centre, CAMH); Sue Hutton (Registered Social Worker, Azrieli Adult Neurodevelopmental Centre, CAMH); Jan Wozniak (Program Engagement Facilitator, Azrieli Adult Neurodevelopmental Centre, CAMH)
    Therapeutic Programs
  5. A Cross – Sectoral Approach to Care for Medically Complex Individuals with Developmental Disabilities
    Presented by: Whitney Faragher (Health Care Facilitator, Community Networks of Specialized Care- Central East/CLH DSS); Sandra Martino (Health Care Facilitator, Community Networks of Specialized Care- Central East/CLH DSS)
    Systems Collaborations
1:45pm-2:15pm Posters, Supporters, and Networking Break
2:15pm-3:15pm

Breakout Workshops B

  1. Forming The Circle: Indigeneity, Neurodevelopmental Disabilities, and Mental Health
    Presented by: Kendra Thomson (Professor, Brock University); Louis Busch (Community Support Specialist, CAMH)
    Understanding Lived Experience
  2. Changes in Health-Promoting Lifestyle-Related Factors Among Adults with Intellectual and Developmental Disabilities After Community Transition
    Presented by: Maria Baranowski (Research Intern, University of Manitoba)
    Supporting Transitions
  3. Potential Benefits of a Genetic Diagnosis for Adults with a Developmental Disability: Experience Gained from 500 Individuals with the Most Common Microdeletion
    Presented by: Lisa Palmer (Social worker, University Health Network); Samantha D’Arcy (Dietitian, University Health Network)
    Preventative Care
  4. Using Arts-Based Knowledge Translation to Foster and Develop Belonging for Young Adults with Intellectual and Developmental Disabilities
    Presented by: Runqun Helen Zheng (Graduate Student, University of Toronto); Francis Routledge (Graduate Student, University of Toronto); Zoe Stanley (Project Consultant, University of Toronto)
    Therapeutic Programs
  5. Does Canada need a National Disability Strategy and Funding Program? Lessons Learned from Australia’s 10-year Experience
    Presented by: Alvin Loh (Developmental Paediatrician, Surrey Place); Hubert Van Niekerk (Vice Chair, Every Canadian Counts); Olaf Kraus De Camargo (Co-Director, CanChild Centre for Childhood Disability Research)
    Systems Collaborations
3:15pm-3:45pm Posters, Supporters, and Networking Break
3:45pm-4:45pm Keynote B
Equitable Healthcare Access
Panelists:
Alyson Mahar; Assistant Professor; School of Nursing, Queen’s University
Anamaria Richardson; Community Based Pediatrician, Faculty of Medicine, University of British Columbia; Investigator and General Pediatrician, BC Children’s Hospital;
Steve Lipinski; Board Member of the Canadian Society for Disability and Oral Health; Division of Dentistry and Oral/Maxillofacial Surgery, Trillium Health Partners, Credit Valley Hospital; Diplomate of the American Board of Dental Sleep Medicine
Moderated by: Alicia Thatcher, Family Physician Saskatchewan Health Authority, IDD Primary Care Consultant Creative Options Regina, Assistant Professor University of Saskatchewan
Enhanced Skills in Primary Care for Adults with Intellectual and Developmental Disabilities
4:45pm-5:00pm Closing Remarks
Emcee: Tiana Kirkegaard; Young Leader, Leading Change, L’Arche Canada; Advocate, Actor, Improviser, Dancer
Conference Director: Megan Primeau; Continuing Professional Development, Temerty Faculty of Medicine, University of Toronto