Health and Wellbeing in Developmental Disabilities

Day 2: Thursday February 10

All times eastern

11:30am-11:45am Welcome
David Hill, Self-Advocate (he/him)

Keynote B:
COVID-19 and people with intellectual disabilities in the UK: what has the pandemic taught us about health inequalities?

Chris Hatton (he/him), Professor of Social Care, Manchester Metropolitan University

Even before COVID-19, people with intellectual disabilities in the UK were experiencing pervasive health inequalities. In this talk I want to discuss how the COVID-19 pandemic is playing out with regards to people with intellectual disabilities and those close to them. This will include what we know about COVID-19 infections and deaths among people with intellectual disabilities, how people with intellectual disabilities and those close to them have experienced life through the pandemic, and how broad COVID-19 policies and changes to health and support services through the pandemic have acted on health inequalities. The overall picture in the UK has to be considered one of broad-based policy failure when it comes to people with intellectual disabilities, although there are some positive glimmers showing that large-scale positive change is possible.

12:30pm-12:40pm Break
12:40pm-1:40pm Breakout D
(5 sessions to choose from)

  1. Cross Sector Collaboration – Aging and DevelopmentalDisabilities
    Presented by: Cindy Dodd, Central LHIN; Sandy Stemp, Reena
  2. Issues Facing Canadian Siblings of People with Developmental Disabilities: Opportunities, Challenges and Innovative Practices to Support Health and Well-being
    Presented by: Helen Ries, The Sibling Collaborative; Nicole Bobbette, Queen’s University; Brianne Redquest, Alberta Children’s Hospital Research Institute, Werklund School of Education, University of Calgary; Yona Lunsky, Centre for Addictions and Mental Health
  3. Pivoting Community Network of Specialized Care Supports for Complex Health Care Needs of People with IDD, Caregivers and Service Providers During Pandemic Times, and Continuing Innovative Strategies for Future
    Presented by: Cindy Chatzis, Regional Support Associates; Angela Gonzales, Surrey Place; Kim Perrier, Surrey Place
  4. Youth’s perspectives on fostering supportive conversations about mental health
    Presented by: Patrick Jachyra, Durham University
  5. Zi-Fi’ & ‘sLO-CO’- Using simple approacheswith video to teach new skills in less time and with a fraction of the cost.
    Presented by: Renee Lieu, Family MemberANDCaregiver Sensory Education Group: Adapting to Virtual Service Delivery
    Presented by: Madiha Sultan, Surrey Place; Andrea Tsang, Surrey Place
1:40pm-2:10pm Networking/Poster Viewing
2:10pm-2:20pm Break
2:20pm-3:20pm Breakout E
(4 sessions to choose from)

  1. A realist review of programs for siblings of children who have an intellectual/developmental disability: Implications for current and future support
    Presented by: Sandra Marquis, School of Nursing University of British ColumbiaANDThe Mental Health of Parents and Siblings of Children who have Intellectual/Developmental Disability and Live in British Columbia
    Presented by: Sandra Marquis, School of Nursing University of British Columbia
  2. COVID-19 Health Monitoring & Supportive Care in Home and/or Developmental Services Residential Care Settings
    Presented by: Karen Cowan, New Visions; Sandy Stemp, Reena
  3. The processing of Trauma in Individuals with Autism Spectrum Disorders
    Presented by: Bob King, Surrey Place
  4. Tools for the IDD Palliative Care Journey: Capacity Building High Quality Palliative Care. Introducing a Specialized Intellectual/Developmental Disabilities (IDD) Palliative Care Toolkit for Ontario.
    Presented by: Tracey Human, Pain & Symptom Management Consultation (PPSMC) Toronto Program; Angela Gonzales, Surrey Place
3:20pm-3:30pm Break

Keynote C
Primary Care Panel: Primary Care for People with Developmental Disabilities: Current Issues and Solutions

Alicia Thatcher MD, CCFP (she/her); Karen McNeil (she/her) MD, CCFP, FCFP (she/her); Ullanda Niel MD, CCFP (she/her)

Join us for a lively discussion about current and emerging issues relating to providing care to people with developmental disabilities, including health inequities, engaging physicians, and emerging issues and solutions. Our panelists come from different regions of the country, are at different stages of their careers, and bring a diverse background of experiences, and all are eager to share their thoughts and ideas with you as we look for ways to learn from recent experiences and move forward in a more proactive way.

4:30pm-4:45pm Closing Remarks
Vikram Dua, MD, FRCP(C); David Hill, Self-Advocate (he/him)