Day 1: Wednesday February 9

All times eastern

11:30am-11:45am Welcome
David Hill, Self-Advocate
11:45am-12:30pm

Keynote A:
Imvisible

Amber Cutter, Self-Advocate

During this talk, Amber will share her personal experiences in her many interactions with medical staff and members of her community as a person with a developmental disability, who is non-verbal and relies on technology and those closest to her to be her voice. Amber is an intelligent woman and a strong advocate who is often treated like a child due to people’s pre-conceived ideas about her abilities due to her disability. Amber will share her personal experiences of her many interactions with medical professionals, both good and not so great with hopes that her experiences will give the audience insights into the realities of what it feels like to walk in her shoes. She will share tips and suggestions that may help improve the interaction you have with people with developmental disabilities.

12:30pm-12:40pm Break
12:40pm-1:40pm Breakout A
(5 sessions to choose from)

  1. Assessment of severe self -injurious behavior (SIB) in children and youth with Autism and global developmental delays
    Presented by: Robin Friedlander, BC Children’s Hospital; Katie Allen, BC Children’s Hospital; Anamaria Richardson, BC Children’s Hospital
  2. Breathe and Blossom: Mindfulness and Yoga for Youth with IDD
    Presented by: Natalie Healy, Surrey Place
  3. Building Capacity for Successful Aging and Health: A cross sectoral collaborative approach to supporting older adults with developmental disabilities.
    Presented by: Andrea Rutherford, Humber College – Faculty of Social and Community Services; Paula Frappier, Homewood Health Centre and CMHA (Waterloo, Wellington); Robin Smart, Alzheimer Society – Waterloo Wellington; Brenda Van Houtven, Parents for Community Living; Catherine Ryan, Community Living DufferinANDPromoting Healthy Systems through Trauma-Informed Care: The Implementation of a Learning Collaborative among Organizations for People with Developmental Disabilities in the United States
    Presented by: Steve Brown, The Traumatic Stress Institute, Klingberg Family Centers; John Keesler, Indiana University Bloomington; Jade Presnell, Indiana University – Purdue University Indianapolis
  4. Is there a role for virtual health care for patients with developmental disabilities?
    Presented by: Avra Selick, University of Toronto
  5. Learning together: A conversation on patient engagement perspectives in IDD health education and research initiatives at the Azrieli Adult Neurodevelopmental Centre
    Presented by: Muhammad Irfan Jiwa, Azrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health; Yousef Safar, Azrieli Adult Neurodevelopmental Centre, Centre for Addictions and Mental Health; Sabrina Campanella, Azrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health; Victor Pereira, Azrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health; Erica Streisslberger, Centre for Addiction and Mental Health
1:40pm-2:10pm Networking / Poster Viewing
2:10pm-2:20pm Break
2:20pm-3:20pm Breakout B
(5 sessions to choose from)

  1. “It’s like a shockwave”: Initial findings of dissertation research with bereaved people with developmental disabilities
    Presented by: Cara Grosset, Wilfrid Laurier University
  2. Dual Diagnosis Alternate Level of Care Prototype
    Presented by: Dianna Cochrane, Ministry of Health; Ryan Hodgson, Ministry of Health
  3. Hospital-Based Adaptive Care Planning for Children/Youth with Developmental Disability/Autism Spectrum Disorder: A Model of Family-Centred, Integrated, Interdisciplinary, and Individualized Adapted Care
    Presented by: Joelene Huber, The Hospital for Sick Children/Surrey Place Division of Developmental Paediatrics, Department of Paediatrics University of Toronto; Jessica Esufali, The Hospital for Sick Children; Chantal St. Jules, The Hospital for Sick Children; Natasha Mills, The Hospital for Sick Children; Aliya Rahim, The Hospital for Sick Children/Surrey Place and Brock University; Caleb Tait, The Hospital for Sick Children; Nicole Staples-Dorey, The Hospital for Sick Children/Surrey Place; Stacie Carroll, Toronto District School Board and The Hospital for Sick Children
  4. Identification and management of catatonia in youth with autism spectrum disorder and intellectual disability
    Presented by: Anupam Thakur, Centre for Addiction and Mental Health/ Surrey Place; Pushpal Desarkar, Centre for Addiction and Mental Health
  5. Manitobans with Developmental Disabilities Transitioning from a Congregate Care Setting to Homes in the Community: Quality of Life and Process Outcomes.
    Presented by: Lindsay McCombe, St.Amant Research Centre AND Resilience of Persons with Profound Intellectual and Multiple Disabilities Living in the Community: Perspectives of Family Members
    Presented by: Margherita Cameranesi, Dalhousie University
3:20pm-3:30pm Break
3:30pm-4:30pm Breakout C
(4 sessions to choose from)

  1. Adapting an established virtual educational model to support frontline providers in caring for people with intellectual and developmental disabilities during the COVID-19 pandemic
    Presented by: Anupam Thakur, Centre for Addiction and Mental Health/Surrey Place; Angela Gonzales, Surrey Place; Cheryl Pereira, Centre for Addiction and Mental Health; Erica Streisslberger, Centre for Addiction and Mental Health; Gill Lefkowitz, Centre for Addiction and Mental Health; Kendra Thomson, Azrieli Neurodevelopmental Centre, CAMH; Nadia Mia, Surrey Place; Renisha Iruthayanathan, Centre for Addiction and Mental Health; Ullanda Niel, Surrey Place and Scarborough Healthy Communities Health Centre; Yona Lunsky, Centre for Addictions and Mental Health
  2. Best Practices in Supporting the Mental Health of Neurodiverse Children and Adolescents
    Presented by: Jonathan Weiss, York University; Cathy Lonergan, Youth Services Bureau of Ottawa; Caitlyn Gallant, York University; Sean Robb, McMaster University
  3. The Bi pi maadzing zaagidwin teg jichaaming / Circle of Life in the Spirit of Love Project
    Presented by: Dorothy Elie, Independent; Kim Daniel, Surrey Place; Serena Hickes ᐃᑯᐊᓛᖅ, Independent; Defne Inceoglu, Surrey Place; Judy Verseghy, Surrey Place
  4. Towards Building Dementia Knowledgeable Supports
    Presented by: Leslie Udell, NTG Canadian Consortium
4:30pm-4:45pm Closing Remarks
Vikram Dua, MD, FRCP(C); David Hill